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Web Links
Our Web visitors and callers are often looking for good Internet resources related to Alzheimer's disease. Below are Web links with descriptions highlighting practical resources you can print or download at no cost. The Web sites below contain more information than described here. Noodle around a bit and see what else you find.
Alzheimer's Association National Office
http://www.alz.org
You are currently at the Alzheimer's Association Web site. The home
page is a portal to hundreds of pages of content on Alzheimer's disease
and care. Over 140 publications
on all aspects of the disease are free to download. Health care professionals
and families can access the Alzheimer's
Association Dementia Care Practice Recommendations for Assisted Living
Residences and Nursing Homes which contain our official recommendations
for dementia care. Visitors have access to information in other
languages, including our bilingual Latinos
and Alzheimer's portal and our Asian
portal that includes resources in Chinese, Korean and Vietnamese.
The popular Brain
Tour explains how the brain works and how Alzheimer's affects
it in 14 languages. The Alzheimer's
Project takes a look at the disease through 4 online films in
streaming video. TrialMatch™
helps families locate clinical trials based on personal criteria.
Comfort
Zone uses the Internet and a device to track the location of a
person with Alzheimer's. You can also purchase educational
products on our Web site. The Alzheimer's Association "Research
Center" presents an extensive portfolio of information for
finding the latest research from around the globe, how to volunteer
for Alzheimer's clinical trials in your area, and more.
Alzheimer's Disease Education and Referral Center (ADEAR)
http://www.nia.nih.gov/Alzheimers
This Web site includes information for consumers on Alzheimer's disease
from the National Institute on Aging. Notable are the booklets, fact
sheets, newsletter and training programs available through the publications
link on their home page. View a 4-minute captioned video
showing the intricate mechanisms involved in the progression of Alzheimer's
disease in the brain. Unraveling
the Mystery, contains both basic and technical information
on the scientific and social aspects of Alzheimer's. Resources are
available in English and Spanish.
Alzheimer's Research Forum
http://www.alzforum.org/dis/abo/default.asp
Alzheimer's Research Forum is primarily geared toward researchers,
but persons with Alzheimer's and families will also benefit. Many
pages of web content can be printed or emailed. Detailed information
on disease
management, drug
development, research,
and news
is available. Notable is the ability to find experts in the field
of Alzheimer's research through their membership
directory.
Alzheimer Store from Ageless Design
http://www.alzstore.com
This online store carries a variety of products for the person with
Alzheimer's. Consumers should investigate each resource to determine
individual preference.
By Us For Us© Guides
http://marep.uwaterloo.ca/products/bufu.html
PDF guides created through the Kenneth G. Murray Alzheimer Research
and Education Program (MAREP) at the University of Waterloo by persons
with dementia for persons with dementia. The guides are practical
tools to help enhance well being and manage daily challenges.
California Guideline for Alzheimer's Disease Management,
2008
http://www.alz.org/socal/in_my_community_professionals.asp#
Clinical_guidelines
Find a summary document and the full report of specific guidelines
for the management of Alzheimer's disease from early to end stage.
The information presented is backed with scientific evidence and supported
with opinions from experts.
ClinicalTrials.gov
http://clinicaltrials.gov
Identify regularly updated federally and privately funded clinical
research with human volunteers. Locate information about a trial's
purpose, who may participate, locations, phone numbers and whether
a trial is still recruiting. Find information about participating
in an Alzheimer's research study, see our alz.org section called Participating
in Clinical Studies.
Family Caregiver Alliance (FCA)
http://www.caregiver.org
FCA's Publications
section includes fact sheets, newsletters, research studies, reports,
policy briefs and more available for anyone needing information on
caregiving or developing programs and services for families. The National
Center on Caregiving provides a state-by-state, online guide to
identify programs and services nationwide for anyone involved in caregiving.
Materials are available in Spanish and Chinese.
Four Pocket Films
http://www.agingresearch.org/content/article/detail/1653
Four brief films on Alzheimer's disease written by David Shenk, produced by Alliance Aging Channel and MetLife, and narrated by David Hyde Pierce can be watched online or purchased inexpensively. They are: What is Alzheimer's disease?; Alzheimer's disease: an urgent epidemic; Alzheimer's disease: race to the cure; and Alzheimer's disease: a message for newly diagnosed patients and their families.
National Library of Medicine – MedlinePlus
http://www.nlm.nih.gov/medlineplus/
MedlinePlus is a goldmine of health information. It also has extensive
information about drugs, an illustrated medical encyclopedia, interactive
patient tutorials and health news. Pages related to dementia and dementia
care are Alzheimer's
Disease, Dementia,
Alzheimer's
Caregivers and Memory.
The Information is also available in Spanish: Enfermedad
de Alzheimer, Demencia,
Proveedores
de atención al paciente con Alzheimer, Memoria.
Additionally, MedlinePlus email
updates deliver messages about new sites on MedlinePlus along
with other notices. You can sign up to receive general emails covering
all health topics, or you can sign up to receive emails about specific
topics, like Alzheimer's disease.
NIH Senior Health – Alzheimer's Disease
http://nihseniorhealth.gov/index.html
If you are a computer savvy senior, or even if you're not, search the National Institutes of Health Web site on eating well as you get old, exercise for older adults, talking with your doctor, Alzheimer's disease , home care, residential care, caregiver support, safety issues, participating in clinical trials, and more. View the pages in different options like font size, contrast, speech capability, and printer friendly versions.
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